Category Archive: E-Patient

On Losing One’s Bladder

What happens when the physician becomes the patient? What happens when the physician is a urologist and the disease he has, is something he’s treated before? Joseph Salisz can explain what happens because… Continue reading

From Bewitchment to Genetics: Cystic Fibrosis and Emily’s Entourage

“If it tastes salty when someone is kissed on the brow, then this person is hexed” (bewitched).” “The child will soon die whose brow tastes salty when kissed.” Cystic Fibrosis and Emily’s Entourage… Continue reading

Infographic

When Patients Share Internet Health Information With Their Physicians This is an infographic that I created to describe a short “survey” that I conducted for a week in October, 2013 while working for… Continue reading

Three Activists on Awareness Months

February is National Heart Health Month, April is National Autism Awareness Month and October is National Breast Cancer Awareness Month.  How do those who are affected feel about these awareness campaigns?   Health… Continue reading

Trying to Change the World for the Better: Meet Medivizor

“Medivizor’s vision is to improve the lives of people with serious medical conditions and those who care for them and to effectively apply software and the social web in the field of health for… Continue reading

From Outrage To Action: Dian (CJ) Corneliussen-James and METAvivor

“I started METAvivor out of outrage.” Dian (CJ) Corneliussen-James Co-Founder of METAvivor Research and Support, Inc Born from the outrage of four women, METAvivor Research and Support, Inc. is a non-profit with a… Continue reading

The Power of Patient Blogs: A Window Into the Lived Experience

“Patient blogs reveal the true extent of the impact of cancer on finances, work practices, family life…they offer a window into the lived experience of the patient.” ~Marie Ennis-O’Connor When you are 34… Continue reading

Are Patient Communities an Effective Way to Deliver Care?

Are Patient Communities an Effective Way to Deliver Care? That was the question debated at the 2012 Connected Health Symposium on October 25.  Two physicians, Dr. Andrew Watson, Surgeon and Medical Director for… Continue reading

Motivated to Act: SCAD

The words, “We don’t know” pushed Katherine K. Leon to initiate research at the Mayo Clinic.  Why is this unusual?  Katherine is not a physician or a researcher.  She is a patient. But… Continue reading

Cue the Violins: There’s a Woman in the ER

By SCAD survivor and activist Katherine K. Leon

Taming the beast? Patient centered healthcare

In the US, do you know what is spent per person on healthcare?   In 2008 dollars, it was $7,538 per person (or per capita).  The country with the next highest spending is Norway… Continue reading