Category Archive: Health Information

6 Reality Checks: The Bootless Have No Bootstraps

“…it is a cruel jest to say to a bootless man that he ought to lift himself by his own bootstraps.” –ML King Jr I don’t know why I’m surprised with comments that… Continue reading

From Bewitchment to Genetics: Cystic Fibrosis and Emily’s Entourage

“If it tastes salty when someone is kissed on the brow, then this person is hexed” (bewitched).” “The child will soon die whose brow tastes salty when kissed.” Cystic Fibrosis and Emily’s Entourage… Continue reading

Why Parents MUST NOT Stop!

Parents of Children with Special Needs I am constantly amazed at the bravery of some parents who are activists for their children in schools in the US. There are so many exhausted parents… Continue reading

Schools on Wheels: Helping Homeless Children in Massachusetts

A few years ago I spoke with a group of mothers who were concerned about their children’s school.  The neighborhood they lived in is called “transitional” and the school had an 85% turnover… Continue reading

Patient Advocate–Pat Mastors

Empowered Through Loss Creating A Patient Advocate Pat Mastors’, patient advocate, “medical awakening” came with the tragic loss of her father. “My father, an otherwise healthy 76-year-old, fell down stairs at home and… Continue reading

Being Invisible Girls

What would you do if you were seated on a crowded subway and saw a little girl falling asleep standing up? “I think: someone needs to hold that little girl because she’s sleepy. … Continue reading

Sea-to-Sea: METAvivor and Metastatic Breast Cancer Awareness

“…the biggest problem in the breast cancer business, and make no mistake, it is big business, is the fact that we’ve done nothing to change the death rate. NOTHING.” ~AnneMarie Ciccarella  No Change… Continue reading

The Frog List

“I can use all the prayers I can get!” In August 2011, Jessica Rice had a little cough—‘nothing to worry about’–and a low grade fever that kept her out of work a couple… Continue reading

Anyone Can Get Lung Cancer

“My beloved mother was diagnosed with Stage IIIb non-small cell lung cancer in early June, 2012,” says Deana Hendrickson. “I knew virtually nothing about it…was heartbroken, and frankly angry, to learn that over… Continue reading

Always talk. Always share. Always engage.

“Always talk. Always share. Always engage,” says Anton J. Gunn, Director of External Affairs in the Office of Intergovernmental and External Affairs (IEA) at the U.S. Department of Health and Human Services (HHS). Mr.… Continue reading

It’s Okay To Laugh, Cry and Feel Uncertain

In 1990, Robert Harris and his wife and best friend, Cindy, had been married 10 years and had two boys, ages 2 and 5.  One day, Cindy complained of pain in her knee. … Continue reading

Bringing Back the Story: Wellbound Storytellers and Health Empowerment

The Navajo Sugar Monster Long ago the Holy People predicted that a monster would take over the Navajos. Our mothers and fathers would change…No longer were man and woman together. One after another… Continue reading

“There Is No Health Without Mental Health”

“There is no health without mental health. I’d like crisis care to be linked into your regular healthcare, so your provider can follow-up long-term.” “Suicide is the 10th leading cause of death. The… Continue reading

Wow! What An Incredible Climate Change Infographic

This is an infographic created by Allison Lee. It comes from the website Learn Stuff.  Check out her huge list of sources at the bottom of the infographic.  WOW!

“A Needed Response”

Public health is about keeping people safe…be it through immunizations, assuring clean water or preventing gun violence.  Here is another safety issue we need to address: A story about a friend… There was… Continue reading

From Outrage To Action: Dian (CJ) Corneliussen-James and METAvivor

“I started METAvivor out of outrage.” Dian (CJ) Corneliussen-James Co-Founder of METAvivor Research and Support, Inc Born from the outrage of four women, METAvivor Research and Support, Inc. is a non-profit with a… Continue reading

Brain Awareness: What are Strokes and TIAs?

 “Of 100 people who have a stroke: 10 recover completely, 25 have minor impairment, 40 will have moderate impairment, 10 will require long term care and 15 will die.” David Turkel-Parrella, MD Dr.… Continue reading

Paying for care: What happens to 21 year old family members with severe autism after graduating from high school? Part 2

It costs over $75,000 per year to serve one adult with autism and expenses can go as high as $200,000 per year per person.  If that isn’t scary, just read on. Locating residential… Continue reading

PTSD and Cancer Diagnosis

Reading blogs by those who have been diagnosed with cancer is illuminating.  At least for some breast cancer patient blogs, their experience has been confirmed by recently reported research. A telephone survey of… Continue reading

Permalink

Originally posted on A4BC Founder's Blog :
Yesterday I put an article in my Breast Cancer Newspaper about a federal committee of leading breast cancer experts that released a report about reducing…

I won’t give up…

My child is a wizard…and a dragon rider…and a super hero.  He can play all these games with such agility that it boggles my mind.  So today when s/he asked me to join… Continue reading

Guardian Angels and Mental Health

Late January I’m reminded of the time I taught an introductory course in persuasion at a nearby university.  I don’t know why, but a significant number of seniors filled out the roster.  Challenging… Continue reading

Every Human Has Rights!

Over the past 8 years, Nicholas Marshall Cooper has been actively involved in making the connection between human rights and health, and translating public health science into rights-based action.  This post is a… Continue reading

Good news on Metastases Research!

Just a short note “quote”… The Answer to How Breast Cancer Invades Bone Researchers recently solved the mystery of how breast cancer takes root in the bone. Now, the discovery has led to… Continue reading

Sobering and Scary

Monday October 29, 2012 Hurricane Sandy struck the Eastern Seaboard. As it moved inland it hit two winter weather systems creating what has been called a hybrid monster storm.  As of November 3rd… Continue reading

Bed Rest versus Family Survival

Language matters.  So when we talk about changing a discussion of “Women’s Health” to “Women and Health,” we aren’t being tedious.  We are being profound.* “Women and Health” is a phrase that recognizes the roles of… Continue reading

World Mental Health Day

Today, October 10th, is also World Mental Health Day.  “Mental illness affects all of us, but there are still many myths and misconceptions about these disorders,” Rosalynn Carter, Founder Carter Center’s Mental Health… Continue reading

“Great Things Are Possible”

Ask a scholar of human rights a seemingly innocuous question and suddenly you are transported into another world.  As Nicholas Cooper observes,  “People in United States are more familiar with civil rights language,… Continue reading

E-Patient Advocacy for Rheumatoid Arthritis: Annette McKinnon

Annette McKinnon is happy with the care she gets as a Canadian citizen. “Our healthcare system covers everyone. We all pay through taxes but all are in the group.  Doctors visits, physicals, imaging,… Continue reading

Marijuana and Brain Development

How does one take the leap from this clip to marijuana use?  Crush’s description of Marlin’s journey through the “jellies” seems to be  the view of many  toward marijuana.  Laughing off “smoking a… Continue reading

The Change We Need: Avoiding Harm in Hospitals

I first posted this on OccupyHealthcare September 10,2012. The Institute of Medicine (IOM) recently published a substantial report on the healthcare system in the US.  According to the report, in the US 1/3 of patients are… Continue reading

Making a World of Difference: Climate Change and Public Health

“It is an overwhelmingly popular misconception that climate change isn’t occurring or is a natural phenomenon.  While some change is due to a natural progression, we can see that increases in temperatures are… Continue reading

Responding to Komen’s New Awareness

MBNCBuzz just posted this advertisement by the Komen Foundation.  It is the first time that the Komen Foundation has acknowledged metastatic breast cancer, Stage IV, in a marketing campaign. The irony that Susan Komen died… Continue reading

Parents Take Notice: Seclusion Rooms

This is beyond disturbing. Does anyone from the school(s) explain the length of time rationale? I mean, don’t get me wrong…the padded room is ridiculous enough, but more alarming is the length of… Continue reading

Patient Safety: Costs in Healthcare

For many years my mother worked part-time in a hospital in North Carolina in quality.  In researching cost and quality issues, she found that a significant amount of money and time was spent… Continue reading

To your health: Music!

I’ve been singing something a lot lately.  It’s silly really but it makes me feel better, keeps me going, even gives me courage… why does this little ditty work? Or why do I… Continue reading

Amazing Gratitude

I feel lucky when I find amazing quotations…. “I wanted a perfect ending. Now I’ve learned, the hard way, that some poems don’t rhyme, and some stories don’t have a clear beginning, middle and… Continue reading

Cancer Language: Erasing Reality

culture:  the integrated pattern of human behavior that includes thought, speech, action, and artifacts and depends upon the human capacity for learning and transmitting knowledge to succeeding generations  Merriam-Websters. The first  Sunday in… Continue reading

Blogging for Mental Health: Reframe the Discussion

Today I am responding to the call for bloggers… Join us on Wednesday, May 16, and publish a post on your blog about mental health’s importance, how we can diminish stigma, or the… Continue reading

Light A Lamp

When I was younger, I would look at a mother playing with her baby and a warm feeling would come over me. I would just dwell in the experience of joy. Now I… Continue reading

Fighting the Stigma of Mental Illness

Suicide has increased (largely due to the prolonged poor economic conditions) [Medical News Today] 90%+ of those who die by suicide have a diagnosable mental illness. [National Institute of Mental Health] One out of five people… Continue reading

Alzheimer’s Disease

When you think about yourself…you think of your personal characteristics, how you look, how you feel.   And you think about the people you have known, your family, your friendships, locations,  where you have… Continue reading

Memorial Day Weekend 2003

At four in the morning, she got a phone call from her sister-in-law, “Your husband is in the Neuro-Intensive Care Unit here.  You better come right away.”  She hurriedly gathered her 2 year… Continue reading

Resilient?

Just a random thought… Have you heard people say Children are resilient…they bounce back…don’t worry about them…? I have and I just want to say to those people If children are so resilient,… Continue reading

Save A Life

This time of year reminds me of the time I taught an introductory course in persuasion at a nearby university.  I don’t know why, but a significant number of seniors filled out the… Continue reading

Motivated by Love

Dr. Susan Love’s Breast Book  was our “go-to” book when my mother was diagnosed with breast cancer.  We were able to understand the pathology reports because of it.  I know that we (my… Continue reading

Dance Like No One’s Watching

Do you live each moment unflinchingly?  Do you taste life the way you do the last bite of your favorite food or savor  its essence as you would the fragrance of summer’s final… Continue reading

Hunger and Health Literacy

Do you believe that a child is personally responsible for going hungry over a weekend?  The thinking person would say, of course not.  Did you know that when a child goes hungry over… Continue reading

Women, Care-giving and Health Literacy

Health literacy is essential to care-giving in the 21st century. The term health literacy is confusing because we can be highly educated yet still have poor health literacy.  So what is health literacy?  It’s about understanding… Continue reading

A National Emergency: Horrible Death for Older Man With Autism

Update: There has been a horrible event in California: This is a matter of LIFE AND DEATH. Isn’t everyone supposed to be cared for? Basic Police Work Ignored The US Centers for Disease… Continue reading